Make-A-Wish

Nathan was granted a wish from Make-A-Wish in November of 2015. He wished to have a truck stop in his back yard. Our friends at Make-A-Wish made his dreams come true. They built a play structure in the backyard for him to play with his trucks and enjoy being a kid.

Please donate to this amazing cause!
Checks made payable to Make-A-Wish Foundation can be sent to: Michael Leckey at 310 Macintosh Dr. Mars, PA 16046 or donations can be made online by following the link on the right.

Friday, December 13, 2013

December 13, 2013

Nathan received his 4th vaccination yesterday.  It was a long day because the clinic was running about 2 hours behind, but Nathan was a trooper as always.  The injections are very painful, but after they are over he runs up and down the hallways like nothing every happened.  He has learned how to say all the nurses and doctors names, so everyone got a kick out of hearing him say their names and Merry Christmas.  Although these days are never easy, the clinic is a very comfortable place for kids.  They make it as easy as possible for Nathan and that is all the matters.  He loves playing with the kitchen and all the new toys!

It has been 11 weeks since he started the vaccine and stopped chemotherapy.  He is doing extremely well.  Nathan is eating well, started drinking more by mouth, is getting stronger every day, and talks non stop.  All signs are pointing in the right direction at this point, but the next 6 weeks are the most critical.  The doctor told us that now is when we will start to see the immune system build up and things will go one way or the other.  Now is the time they start to see brain swelling from the vaccine and it is very difficult to know what is real tumor growth and what is a reaction.  We will monitor him closely over the next several weeks leading up to vaccine #5 and the scan on January 23rd.  

Unfortunately, Nathan doesn't feel great today.  He gets a fever and has some nausea following the vaccine.  We hope it only last a few days and he will be back to his crazy self soon!

We are so grateful to be enjoying this holiday season with Nathan.  He loves Santa and all the wonderful things that come with Christmas.  We take each day as it comes and are grateful for the healthy days.  Nathan continues to remind us how important each day is and to never take life for granted.


Monday, December 2, 2013

November 20, 2013

Nathan received vaccine #3 today.  Since he was not able to receive the vaccine following the MRI, we went back today and everything went very smoothly.  Although the shots are still very painful, Nathan has learned how to use the blood pressure machine and thinks it is great he gets to push the green button.  After 2 1/2 years of screaming when he gets his blood pressure taken, all of a sudden pushing the green button makes everything better.

Pap was with us and helped to keep things fun for Nathan.  The two of them run up and down the halls after the vaccine is injected to help get things moving through his legs.  Nathan was fighting a cold before the vaccine so hopefully this will not effect him even more.  He usually has trouble sleeping for about a week after the vaccine.  We hope each time gets a little easier.