May 19, 2014

Nathan received his first round of Avastin today.  He was a total champ if I must say.  One of the biggest obstacles was that he had get an IV to get the chemo.  We practiced with his doctors kit all weekend so he knew what to expect.  He likes to look for veins on mom and dad and use his special light.  We always have to get a mickey band aid at the end. He was anxious with everything new that was happening and kept saying, "Not for me," but he did really well.  They were able to place the IV fairly quickly which helped.  He also wore his IV sock so he didn't have to look at it.  Nathan just knows when he has to be patient and adjust.  The infusion took about 2 1/2 hours and Nathan was a total angel.  He sat and ate his lunch, played his puzzles with pap, colored, and watched his iPad.  He watches every little move the nurses make, but takes it all in and once he knows he safe he says, "thank you" to the nurses.  I was really proud of my little man today.  He was much stronger than his mommy!  We hope and pray we are able to continue getting veins easily and we can avoid the PICC line which would be very limiting for Nathan.

Nathan is weak right now and his symptoms are worse than we have seen in a very long time.  Nathan needs help and needs to get better.  We are hopeful that this chemo will help Nathan and do so quickly.  He is fighting through the side effects and working hard to be a happy little boy!

Thank you for your constant thoughts and prayers.  As always, you helped us get through a difficult week.

Nathan's special Steeler's sock to cover his IV

First infusion of Avastin.  Nathan did great!